Tag: education

College Tidbits

After returning from the wild woods of upstate, my house is currently caught in the scramble of preparing for college classes. On the whole, I think I am in decent shape. But since it has been the only thing on my mind, here are some assorted pieces of advice which new college students may find useful; tidbits I wish I had known, or in the cases where I did know them, wish I had been able to get them through my thick skull earlier. 

Get an umbrella
Sure, there are more important things to make sure you have before going to college. But most of those things are obvious: backpacks, laptops, writing instruments, and so on. No one talks about back to school umbrellas, though. Of the items I have added to my school bag, my collapsible umbrella is the most useful, least obvious. To explain its great use, I will appropriate a quote from one of my favorite pieces of literature:

Partly it has great practical value. You can open it up to scare off birds and small children; you can wield it like a nightstick in hand to hand combat; use it as a prop in a comedy sketch for an unannounced improv event on the quad; turn it inside out as an improvised parabolic dish to repair a satellite antenna; use it as an excuse to snuggle up next to a crush as you walk them through the rain to their next class; you can wave your umbrella in emergencies as a distress signal, and of course, keep yourself dry with it if it doesn’t seem too worn out.

More importantly, an umbrella has immense psychological value. For some reason, if a Prof discovers that a student has their umbrella with them, they will automatically assume that they are also in possession of a notebook, pencil, pen, tin of biscuits, water bottle, phone charger, map, ball of string, gnat spray, wet weather gear, homework assignment etc., etc. Furthermore, the Prof will then happily lend the student any of these or a dozen other items that the student might accidentally have “lost.” What the Prof will think is that any student who can walk the length and breadth of the campus, rough it, slum it, struggle against terrible odds, win through, and still know where their umbrella is, is clearly a force to be reckoned with.

Find out what programs your school uses, and get acquainted with them
The appropriate time to learn about the format your school requires for assignments is not the night before your essay is due. The time for that is now, before classes, or at least, before you get bogged down in work. Figure out your school email account, and whether that comes with some kind of subscription to Microsoft or google or whatever; if so, those are the programs you’ll be expected to use. Learn how to use them, in accordance with whatever style guide (probably MLA or APA) your school and departments prefer. 

You can, of course, keep using a private email or service for non-school stuff. In fact, I recommend it, because sometimes school networks go down, and it can be difficult to figure out what’s happening if your only mode of communication is down. But don’t risk violating handbook or technology policies by using your personal accounts for what’s supposed to be school business. And if you’re in a group project, don’t be that one guy who insists on only being contacted only through their personal favorite format despite everyone else using the official channels. 

Try not to get swept up in future problems
Going into college, you are an adult now. You may still have the training wheels on, but the controls are in your hands. If you’re like me, this is exhilarating, but also immensely terrifying, because you’ve been under the impression this whole time that adults were supposed to know all the answers intuitively, and be put together, and you don’t feel like you meet those criteria. You’re suddenly in the driver’s seat, and you’re worried that you never got a license, or even know how not to crash. If this is you, I want you to take a deep breath. Then another. Get a cup of tea, treat yourself to a nice cookie. You can do that, after all, being an adult. True, it might be nutritionally inadvisable to have, say, a dozen cookies, but if that’s what you need, go ahead. You need only your own permission. Take a moment. 

Despite the ease of analogies, adulthood isn’t like driving, at least not how I think of driving. There aren’t traffic laws, or cops to pull you over and take away your license. I mean, there are both of those things in the world at large, but bear with me. Adulthood isn’t about you being responsible to others, though that’s certainly a feature. Adulthood is about being responsible as a whole, first and foremost to yourself. In college, you will be responsible for many things, from the trivial to the life altering. Your actions will have consequences. But with a few exceptions, these are all things that you get to decide how they affect you. 

My college, at least, tried to impress the, let’s say, extreme advisability, of following their plans upon freshmen by emphasizing the consequences otherwise. But to me, it was the opposite of helpful, since hearing an outside voice tell me I need to be worried about something immediately  plants the seeds of failure and doubt in my head. Instead, what helped me stay sane was realizing that I could walk away if I wanted. Sure, failing my classes would carry a price I would have to work out later. But it was my decision whether that price was worth it. 

Talk to Your Professors
The other thing worth mentioning here is that you may find, once you prove your good faith and awesome potential, that many items you were led to believe were immutable pillars of the adult world… aren’t so immutable. Assignment requirements can be bent to accommodate a clever take. Grades on a test can be rounded up for a student that makes a good showing. Bureaucracy can, on occasion, be circumvented through a chat with the right person. Not always, but often enough that it’s worth making a good impression with staff and faculty. 

This is actually a good piece of life advice in general. I’ve heard from people who work that no one notices that you’re coming in late if you come in bearing donuts, and I have every reason to believe this is true. I’ve brought cookies in to all of my classes and professors before exams, and so far, I’ve done quite well on all of them. 

Learning Abilities

If I have a special talent, it is that I am very good at learning a lot of things quickly. This isn’t the same thing as being a fast learner; I’m not a fast learner. If something doesn’t click the first time I’m exposed to it, there’s a very good chance it’s going to take me a long time to wrap my head around it. I suppose that makes me lucky, then, that most things tend to click. My real talent is being able to work with lots of information in a format where everything is new, and rapidly put together connected pieces in order to deduce the underlying patterns.

I realized I had this talent in High School, where it served the purpose of helping me bluff my way through classes in which I had no business participating. Most egregiously, in English class, where my class participation counted for a disproportionate percentage of my grade, and my chronic illnesses meant I frequently arrived back just as the class had finished reading a book of which I hadn’t received a copy. On many occasions, I would earn points by building off or reflecting upon points raised by other students. On two occasions, I wrote essays about books I had never held, much less read. I got A’s on both essays, and never scored below an 87% (which was only ever so low because the teacher counted two missed exams as zeros rather than allowing me to retake them) in English as a whole.
Some friends of mine have called this cheating. I disagree. I never claimed that I read the books in question. On the contrary, on the occasions that I mentioned the fact that I had never received a copy to my teachers, I was told simply to try my best to keep up with the class in the meantime while they tracked down an extra copy. So the teachers were aware, or should have been aware, that I was talking off the cuff. I never consulted some other source, like sparknotes, that wretched hive of plagiarist scoundrels and academic villainy.
In any case, I have found this talent to be most useful when diving into a new area. I may not be able to become an expert faster than anyone else, but I can usually string enough information together to sound like I know that of which I speak, and ensure that my questions are insightful and topical, befitting an enlightened discussion, rather than shallow and obvious questions betraying a fresh initiate to the field. This means that I am, perhaps ironically, best in my element when I am furthest behind. I learn more faster by throwing myself into the deep end of something I know nothing about, than reviewing stuff I mostly know.
Secretly, I suspect this is actually not a unique talent. I think most, or at least, many people, learn effectively this way. But whether through a school system designed on a model intended more to promote martial regimentation than intellectual striving, or a culture that punishes failure far more sharply than it incentivizes the entrepreneurial experimentation necessary for personal academic success, we have taught ourselves to avoid this kind of behavior. But whether this talent is mine alone, or I have merely been the first to recognize that the emperor has, in fact, no clothes, this places me in a unique situation.
The problem comes when called upon to follow up on initial successes. Usually this is, in practice, a moot point, because this is precisely where I get sick, miss class, and wind up behind again, where I can capitalize on my skill set and come rocketing back in the nick of time. But this year, with a few exceptions, I have been healthy, or at least, healthy enough to keep up. It turns out that when you follow a course at the intended pace of one week per week, instead of missing months in a febrile delirium and frantically tearing through the textbook in the space of a frantic fortnight, things are, for the most part, manageable.
This is a novel, if not inherently difficult, problem for me- learning at an ordinary pace, instead of a crash course. It’s the informational difference between a week long car trip and an overnight flight. You’d think that learning in such an environment, with one new thing among eleven things I already know, would be easier than taking in twelve new things. But I find that this isn’t necessarily true. I’m good at taking in information,but rubbish at prioritizing information.

Looking Over my Shoulder

This week, I met with the disability office at my local community office. I am signed up to begin classes in the fall, but until now have conspicuously and deliberately avoided saying as much, not out of concern for privacy, but out of a borderline superstitious paranoia- a feeling; nay, a certainty; that something will go wrong, and I would once again be prevented from making progress in my life.

First I was convinced that my high school would mess something up with the paperwork. This prediction wasn’t wrong per se- the high school did, true to character, misplace and forget paperwork, and miss deadlines, but this did not prevent my enrollment.
Next, I feared that I would not be able to find classes at a time when my illnesses would allow me to attend. This turned out to be a non-issue. There was a minor glitch whereupon I was automatically enrolled in a compulsory first year class at an unworkable time, and the orientation speakers made it abundantly clear that changing these selections was strongly discouraged. For a few brief moments, I thought that all was lost. But instead, I simply had to have a short conversation with an administrator.
Unlike nearly every authority figure in high school, who was usually either willing or able to help, but never both, these people were in fact quite helpful. I didn’t even need to break out my script in which I hit all the legal buzzwords, making it clear that I am prepared to play hardball, and even take legal action if need be. I only got halfway through explaining the problem before the administrator offered a solution- switching me to a later class with a few clicks.
Meeting with the disability office was the last major hurdle before I could sit back and enjoy summer prior to starting classes. And going in, I was bracing for a fight. I had gotten my classes by being early and lucky, I reasoned, and the administrator had yielded the moment I hinted at health issues because it was outside his field of expertise, and he wasn’t willing to walk into that particular mine field without a map. But these people, by their very job description, would probably be better versed in the minutiae of the law than I was, and could cite their own policies which I hadn’t even seen.
It was, after all, their job to cross examine claims of disability, and mine were not particularly easy to understand or grasp. Worse still, the office had specifically requested documentation from my doctors and my high school, and while my doctors had come through, the high school, true to form, had procrastinated, and only given me some of what I asked for, leaving me light on supporting documentation. I prepared for a vicious argument, or worse, to be shown the door without any accommodations, forced to go and assemble paperwork, doctors, and lawyers for a full formal meeting, which would probably take until after classes started to arrange.
To my absolute shock, the meeting went smoothly. The people there were not just reasonable, but helpful. They didn’t quite “get” everything, and I had to explain how things worked more often than I might have expected for people who are supposed to be experts, but there was no deliberate obstructionism, no procedural tactics, and no trying to strong arm me into one course of action over another. The contrast was jarring, and to a great extent, unnerving. I expected there to be a catch, and there wasn’t.
There is a Russian proverb to the effect of: only a fool smiles without reason. This has a double meaning that loses something in translation. Firstly, the obvious: the person who smiles without provocation is a naive idiot. And secondly, that if an otherwise smart-looking person in front of you is smiling without apparent reason, you’re being played.
As a rule, I don’t trust people, myself included. It might be slightly more accurate to say that what I don’t trust are the conditions and random factors that give rise to people’s behaviors, but at a certain point, that distinction becomes merely academic. This is neither an inherited worldview nor one I have refined through careful philosophizing, but rather one that has been painfully learned over many years of low level trauma, and staccato bursts of high tragedy. I have been told that this attitude is unfortunately cynical for one of my age and talent, but I do not think at present that it can be unlearned.
The last year, measured from about this same time last year, when it became well and truly clear that I was definitely going to finally be done with high school, has been the most serene and content in recent memory. It didn’t have all of the high points and excitement of some years, which is why I hesitate to declare it indisputably the happiest, but the elimination of my largest source of grief in high school (besides of course my disabilities themselves) has been an unprecedented boon to my quality of life.
Yet at the same time I find myself continually in a state of suspense. I keep waiting for the other shoe to drop, for me to be hauled back to high school and my Sisyphean purgatory there, and for the fight to resume. I cannot convince myself that something isn’t about to go wrong.
Perhaps, it has been suggested to me, coming to terms with this uncertainty is merely part of adulthood, and I am overthinking it per the norm. Or perhaps I misjudge just how abnormally awful my particular high school experience was, and the armchair psychologists are correct in saying that going through everything I have has warped my perspective and created a syndrome akin to low level PTSD. I wouldn’t know how to tell the difference in any case.
But assuming for the moment that my instincts are wrong, and that I am not any more likely to be on the cusp of a tragic downfall any more than usual, how do I assuage these fears? Moreover, how do I separate strategic conservatism from actual paranoia? How do I prevent my predictions of future misery from becoming self-fulfilling?
I have no particular answer today, other than vague rhetoric towards the notion of being more optimistic, and possibly trying to create self-fulfilling prophecies that work in the other direction. But luckily, with this being only the beginning if summer, and my schedule for the semester being decidedly light, the question is not urgent. Nor will I be responsible for answering it alone; amid all this uncomfortable talk of independence and adult decisions, I have taken a fair bit of solace in knowing that I have a strong safety net and ample resources.

Heroes and Nurses

Since I published my last post about being categorically excluded from the nursing program of the university I am applying to, I have had many people insist that I ought to hold my ground on this one, even going so far as filing a legal complaint if that’s what it takes. I should say upfront that I appreciate this support. I appreciate having family and friends that are willing to stand by me, and I appreciate having allies who are willing to defend the rights of those with medical issues. It is an immense comfort to have people like this in my corner.

That firmly stated, there are a few reasons why I’m not fighting this right now. The first is pragmatic: I haven’t gotten into this university yet. Obviously, I don’t want the first impression of a school I hope to be admitted into to be a lawsuit. Moreover, there is some question of standing. Sure, I could try to argue that the fact that I was deterred from applying by their online statements on account of my medical condition constitutes discrimination in and of itself, but without a lot more groundwork to establish my case, it’s not completely open and shut. This could still be worth it if I was terribly passionate about nursing as a life path, which brings me to my second primary reason.

I’m not sure whether nursing would be right for me. Now, to be clear, I stand by my earlier statement that nursing is a career I could definitely see myself in, and which I think represents a distinct opportunity for me. But the same thing is true of several other careers: I think I would also find fulfillment as a researcher, or a policy maker, or an advocate. Nursing is intriguing and promising, but not necessarily uniquely so.

But the more salient point, perhaps, is that the very activities which are dangerous to me specifically, the reasons why I am excluded from the training program, the things which I would have to be very careful to avoid in any career as a nurse for my own safety and that of others, are the very same things that I feel attracted to in nursing.

This requires some unpacking.

Through my childhood my mother has often told me stories of my great-grandfather. To hear all of the tales, nay, legends of this man portray him as a larger than life figure with values and deeds akin to a classical hero of a bygone era. As the story goes, my great grandfather, when he was young, was taken ill with rheumatic fever. Deathly ill, in fact, to a point where the doctors told his parents that he would not survive, and the best they could do was to make him comfortable in his final days.

So weak was he that each carriage and motorcar that passed on the normally busy street outside wracked him with pain. His parents, who were wealthy and influential enough to do so, had the local government close the street. He languished this was for more than a year. And then, against all odds and expectations, he got better. It wasn’t a full recovery, as he still bore the scars on his heart and lungs from the illness. But he survived.

He was able to return back to school, albeit at the same place where he had left off, which was by now a year behind. He not only closed this gap, but in the end, actually skipped a grade and graduated early (Sidenote: If ever I have held unrealistically high academic expectations for myself, or failed to cut myself enough slack with regards to my own handicaps, this is certainly part of the reason why). After graduating, he went on to study law.

When the Second World War reared its ugly head, my great grandfather wanted to volunteer. He wanted to, but couldn’t, because of his rheumatic fever. Still, he wanted to serve his country. So he reached out to his contacts, including a certain fellow lawyer name of Bill Donovan, who had just been tasked by President Roosevelt with forming the Office of Strategic Services, a wartime intelligence agency meant to bring all the various independent intelligence and codebreaking organizations of the armed services under one roof. General Donovan saw that my great-grandfather was given an exemption from the surgeon general in order to be appointed as an officer in the OSS.

I still don’t know exactly what my great grandfather did in the war. He was close enough to Donovan, who played a large enough role in the foundation of the modern CIA, that many of the files are still classified, or at least redacted. I know that he was awarded a variety of medals, including the Legion of Merit, the Order of the British Empire, and the Order of the White Elephant. Family lore contends that the British Secret Service gave him the code number 006 for his work during allied intelligence operations.

I know from public records, among many other fascinating tidbits, that he provided information that was used as evidence at the Nuremberg Trials. I have read declassified letters that show that he maintained a private correspondence with, among other figures, a certain Allan Dulles. And old digitized congressional records show that he was well-respected enough in his field that he was called for the defense counsel in hearings before the House Un-American Activities Committee, where his word as an intelligence officer was able to vindicate former colleagues who were being implicated by the testimony of a female CPUSA organizer and admitted NKVD asset.

The point is, my great grandfather was a hero. He moved among the giants of the era. He helped to bring down the Nazis (the bad guys), bring them to justice, and to defend the innocent. Although I have no conclusive evidence that he was ever, strictly speaking, in danger, since public records are few an far between, it stands to reason that receiving that many medals requires some kind of risk. He did all this despite having no business in the military because of his rheumatic fever. Despite being exempt from the draft, he felt compelled to do his bit, and he did so.

This theme has always had an impact on me. The idea of doing my bit has has a profound, even foundational effect on my philosophy, both in my sense of personal direction, and in my larger ideals of how I think society ought work. And this idea has always been a requirement of any career that I might pursue.

To my mind, the image of nursing, the part that I feel drawn to, is that image used by the World Health Organization, the Red Cross, and the various civil defence and military auxiliary organizations, of the selfless heroine who courageously breaks with her station as a prim and proper lady in order to provide aid and comfort to the boys at the front serving valiantly Over There while the flag is raised in the background to a rising crescendo of your patriotic music of choice. Or else, of the humanitarian volunteer working in a far flung outpost, diligently healing those huddled masses yearning to breath free as they flee conflict. Or possibly of the brave health workers in the neglected tropical regions, serving as humanity’s first and most critical line of defence against global pandemic.

Now, I recognize, at least consciously, that these images are, at best, outdated romanticized images that represent only the most photogenic, if the most intense, fractions of the real work being done by nurses; and at worst are crude, harmful stereotypes that only serve to exacerbate the image problem that has contributed to the global nurse shortage. The common denominator in all of these, is that they are somehow on the “front lines”; that they are nursing as a means to save the world, if not as an individual hero, then certainly as part of a global united front. They represent the most stereotypically heroic, most dangerous aspects of the profession, and, relevant to my case, the very portions which would be prohibitively dangerous to an immunocompromised person.

This raises some deep personal questions. Obviously, I want and intend to do my bit, whatever that may come to mean in my context. But with regards to nursing, am I drawn to it because it is a means to do my bit, or because it offers the means to fit a kind of stereotypical hero archetype that I cannot otherwise by virtue or my exclusion from the military, astronaut training, etc (and probably could not as a nurse for similar reasons)? And the more salient question: if we assume that the more glamorous (for sore lack of a better word) aspects of nursing are out of the question (and given the apparent roadblocks for me to even enter the training program, it certainly seems reasonable to assume that such restrictions will be compelled regardless of my personal attitudes towards the risks involved), am I still interested in pursuing the field?

This is a very difficult question for me to answer, and the various ways in which it can be construed and interpreted make this all the more difficult. For example, my answer to the question “Would you still take this job if you knew it wasn’t as glamorous day to day as it’s presented?” would be very different from my answer to the question “Would you still be satisfied knowing that you were not helping people as much as you could be with the training you have, because your disability was holding you back from contributing in the field?” The latter question also spawns more dilemmas, such as “When faced with an obstacle related to a disability, is it preferable to take a stand on principle, or to cut losses and try to work out a minimally painful solution, even if it means letting disability and discrimination slide by?” All big thematic questions. And if they were not so relevant, I might enjoy idly pondering them.

Byronic Major

I’ve tried to write some version of this post three times now, starting from a broad perspective and slowly focusing in on my personal complaint, bringing in different views and sides of the story. Unfortunately, I haven’t managed to finish any of those. It seems the peculiar nature of my grievance on this occasion lends itself more easily to a sort of gloomy malaise liable to cause antipathy and writer’s block than the kind of righteous indignation that propels good essays.

Still, I need to get these points off my chest somehow. So I’m opting for a more direct approach: I’m upset. There are many reasons why I’m upset, but the main ones pertain to trying to apply to college. I get the impression from my friends who have had to go through the same that college applications may just be a naturally upsetting process. In a best case scenario, you wait in suspense for several weeks for a group of strangers to pass judgement on your carefully-laid life plans; indeed, on your moral character.

Or, if you’re me, you’ve had enough curveballs in your life so far that the pretense of knowing what state you’ll be in and what to do a year from now, let alone four years from now and for the rest of your life, seems ridiculous to the verge of lunacy. So you pull your hair and grit your teeth, and flip coins to choose majors because the application is due in two hours and you can’t pick undecided. So you write post-hoc justifications for why you chose that major, hoping that you’re a good enough writer that whoever reads it doesn’t see through your bluff.

Although certainly anxiety inducing, this isn’t the main reason why I’m upset. I just felt it needed to be included in the context here. While I was researching majors to possibly pick, I came across nursing. This is a field in which I have a fair amount of experience. After all, I spent more time in school in the nurse’s office than in a classroom. I happen to know that there is a global shortage of nurses; more pronounced, indeed, than the shortage of doctors. As a result, not only are there plenty of open jobs with increasing wages and benefits, but there are a growing number of scholarship opportunities and incentives programs for training.

Moreover, I also know that there is an ongoing concerted effort in the nursing field to attempt to correct the staggering gender imbalance, which cake about as a result of Florence Nightingale’s characterization of nursing as the stereotypically feminine activity; a characterization which in recent years has become acutely harmful to the field. Not only has this characterization discouraged young men who might be talented in the field, and created harmful stereotypes, but it has also begun to have an effect on women who seek to establish themselves as independent professionals. It seems the “nursing is for good girls” mentality has caused fewer “good girls”, that is, bright, driven, professional women, to apply to the field, exacerbating the global shortage.

In other words, there is a major opportunity for people such as myself to do some serious good. It’s not as competitive or high pressure as med school, and there are plenty of nursing roles that aren’t exposed to contagion, and so wouldn’t be a problem for my disability. The world is in dire need of nurses, and gender is no longer a barrier. Nursing is a field that I could see myself in, and would be willing to explore.

There’s just one problem: I’m not allowed into the program. My local university, or more specifically, the third-party group they contract with to administer the program, has certain health requirements in order to minimize liability. Specifically, they want immune titers (which I’ve had done before, and never not been deficient).

I understand the rationale behind these restrictions, even if I disagree with them for personal reasons. It’s not a bad policy. Though cliched to say, I’m not angry so much as disappointed. And even then, I’m not sure precisely with whom it is that I find myself disappointed.

Am I disappointed with the third-party contractor for setting workplace safety standards to protect both patients and students, and to adhere to the law in our litigious society? With the university, for contracting with a third party in the aim of giving its students hands-on experience? With the law, for having such high standards of practice for medical professionals? I find it hard to find fault, even accidental fault, with any of these entities. So what, then? Am I upset with myself for being disabled, and for wanting to help others as I have been helped? Maybe; probably, at least a little bit. With the universe, for being this way, that bad outcomes happen just as a result of circumstances? Certainly. But raging at the heavens doesn’t get me anywhere.

I know that I’m justified in being upset. My disability is preventing me from helping others and doing good: that is righteous anger if ever there was a right reason to be angry. A substantial part of me wants to be upset; to refuse to allow anyone or anything from standing in the way of my doing what I think is right, or to dictate the limits of my abilities. I want to be a hero, to overcome the obstacles in my path, to do the right thing no matter the cost. But I’m not sure in this instance the obstacles need to be overcome.

I don’t know where that leaves me. Probably something about a tragic hero.

The War on Kale

I have historically been anti-kale. Not that I don’t approve of the taste of kale. I eat kale in what I would consider fairly normal amounts, and have done even while denouncing kale. My enmity towards kale is not towards the Species Brassica oleracea, Cultivar group Acephala Group. Rather, my hostility is towards that set of notions and ideas for which kale has become a symbol and shorthand for in recent years.

In the circles which I frequent, at least, insofar as kale is known of, it is known as a “superfood”, which I am to understand, means that it is exceptionally healthy. It is touted, by those who are inclined to tout their choices in vegetables, as being an exemplar of the kinds of foods that one ought to eat constantly. That is to say, it is touted as a staple for diets.

Now, just as I have nothing against kale, I also have nothing against diets in the abstract. I recognize that one’s diet is a major factor in one’s long term health, and I appreciate the value of a carefully tailored, personalized diet plan for certain medical situations as a means to an end.

In point of fact, I am on one such plan. My diet plan reflects my medical situation which seems to have the effect of keeping me always on the brink of being clinically underweight, and far below the minimum weight which my doctors believe is healthy for me. My medically-mandated diet plan calls for me to eat more wherever possible; more food, more calories, more fats, proteins, and especially carbohydrates. My diet does not restrict me from eating more, but prohibits me from eating less.

Additionally, because my metabolism and gastronomical system is so capricious as to prevent me from simply eating more of everything without becoming ill and losing more weight, my diet focuses on having me eat the highest density of calories that I can get away with. A perfect meal, according to my dietician, nutrition, endocrinologist and gastroenterologist, would be something along the lines of a massive double burger (well done, per immunologist request), packed with extra cheese, tomatoes, onions, lots of bacon, and a liberal helping of sauce, with a sizable portion of fries, and a thick chocolate malted milkshake. Ideally, I would have this at least three times a day, and preferably a couple more snacks throughout the day.

Here’s the thing: out of all the people who will eventually read this post, only a very small proportion will ever need to be on such a diet. An even smaller proportion will need to stay on this diet outside of a limited timeframe to reach a specific end, such as recovering from an acute medical issue, or bulking up for some manner of physical challenge. This is fine. I wouldn’t expect many other people to be on a diet tailored by a team of medical specialists precisely for me. Despite the overly simplistic terms used in public school health and anatomy classes, every body is subtly (or in my case, not so subtly) different, and has accordingly different needs.

Some people, such as myself, can scarf 10,000 calories a day for a week with no discernible difference in my weight from if I had eaten 2,000. Other people can scarcely eat an entire candy bar without having to answer for it at the doctor’s office six months later. Our diets will, and should, be different to reflect this fact. Moreover, the neither the composition of our respective diets, nor particularly their effectiveness, is at all indicative of some kind of moral character.

This brings me back to kale. I probably couldn’t have told you what kale was before I had fellow high schoolers getting in my face about how kale was the next great superfood, and how if only I were eating more of it, maybe I wouldn’t have so many health problems. Because obviously turning from the diet plan specifically designed by my team of accredited physicians in favor of the one tweeted out by a celebrity is the cure that centuries of research and billions in funding has failed to unlock.

What? How dare I doubt its efficacy? Well obviously it’s not going to “suppress autoimmune activation”, whatever that means, with my kind of attitude. No, of course you know what I’m talking about. Of course you know my disease better than I do. How dare I question your nonexistent credentials? Why, just last night you watched a five minute YouTube video with clip-art graphics and showing how this diet = good and others = bad. Certainly that trumps my meager experience of a combined several months of direct instruction and training from the best healthcare experts in their respective fields, followed by a decade of firsthand self-management, hundreds of hours of volunteer work, and more participation in clinical research than most graduate students. Clearly I know nothing. Besides, those doctors are in the pockets of big pharma; the ones that make those evil vaccines and mind control nanobots.

I do not begrudge those who seek to improve themselves, nor even those who wish to help others by the same means through which they have achieved success themselves. However I cannot abide with those who take their particular diet as the new gospel, and try to see it implemented as a universal morality. Nor can I stand the insistence of those with no medical qualifications telling me that the things I do to stay alive, including my diet; the things that they have the distinct privilege of choice in; are not right for me.

I try to appreciate the honest intentions here where they exist, but frankly I cannot put up with someone who had never walked in my shoes criticizing my life support routine. My medical regimen is not a lifestyle choice any more than breathing is, and I am not going to change either of those things on second-hand advice received in a yoga lesson, or a ted talk, or even a public school health class. I cannot support a movement that calls for the categorical elimination of entire food groups, nor a propaganda campaign against the type of restaurant that helps me stick to my diet, nor the taxation of precisely the kind of foodstuffs which I have been prescribed by my medical team.

With no other option, I can do nothing but vehemently oppose this set of notions pertaining to the new cult of the diet, as I have sometimes referred to it, and its most prominent and recognizable symbol: kale. Indeed, in collages and creative projects in which others have encouraged me to express myself, the phrases “down with kale” and “death to kale”, with accompanying images of scratched-out pictures of kale and other vegetables, have featured prominently. I have one such collage framed and mounted in my bedroom as a reminder of all the wrongs which I seek to right.

This is, I will concede, something of a personal prejudice. Possibly even a stereotype. The kind of people that seem most liable to pierce my bubble and confront me over my diet tend to be the self-assured, zealous sort, and so it seems quite conceivable that I may be experiencing some kind of selection bias that causes me to see only the absolute worst in my interlocutors. It is possible in my ideo-intellectual intifada against kale, that I have thrown the baby out with the bathwater. In honesty, even if this were true, I probably wouldn’t apologize, on the grounds that what I have had to endure has been so upsetting that, with the stakes being my own life and death as they are, that my reaction has been not only justified, but correct.

As a brief aside, there is, I am sure, a great analogy to be drawn here, and an even greater deal of commentary to be drawn on this last train of thought as a reflection of the larger modern socio-political situation; refusing to acknowledge wrongdoing despite being demonstrably in the wrong. Such commentary might even be more interesting and relevant than the post I am currently writing. Nevertheless such musings are outside the scope of this particular post, though I may return to them in the future.

So my position has not changed. I remain convinced that all of my actions have been completely correct. I have not, and do not plan, to renounce my views until such time as I feel I have been conclusively proven wrong, which I do not feel has happened. What has changed is I have been given a glimpse at a different perspective.

What happened is that someone close to me received a new diagnosis of a disease close in pathology to one that I have, and which I am also at higher risk for, which prevents her from eating gluten. This person, who will remain nameless for the purposes of this post, is as good as a sister to me, and the rest of her immediate family are like my own. We see each other at least as often as I see other friends or relations. Our families have gone on vacation together. We visit and dine together regularly enough that any medical issue that affects their kitchen also affects our own.

Now, I try to be an informed person, and prior to my friend’s diagnosis, I was at least peripherally aware of the condition with which she now has to deal. I could have explained the disease’s pathology, symptoms, and treatment, and I probably could have listed a few items that did and did not contain gluten, although this last one is more a consequence of gazing forlornly at the shorter lines at gluten-free buffets at the conferences which I attended than a genuine intent to learn.

What I had not come to appreciate was how difficult it was to find food that was not only free from gluten in itself, but completely safe from any trace of cross contamination, which I have learned, does make a critical difference. Many brands and restaurants offer items that are labeled as gluten free in large print, but then in smaller print immediately below disclaim all responsibility for the results of the actual assembly and preparation of the food, and indeed, for the integrity of the ingredients received from elsewhere. This is, of course, utterly useless.

Where I have found such needed assurances, however, are from those for whom this purity is a point of pride. These are the suppliers that also proudly advertise that they do not stock items containing genetically modified foodstuff, or any produce that has been exposed to chemicals. These are the people who proclaim the supremacy of organic food and vegan diets. They are scrupulous about making sure their food is free of gluten not just because it is necessary for people with certain medical conditions, but as a matter of moral integrity. To them these matters are of not only practical but ethical. In short, these are kale supporters.

This puts me in an awkward position intellectually. On the one hand, the smug superiority with which these kale supporters denounce technologies that have great potential to decrease human hardship based on pseudoscience, and out of dietary pickiness as outlined above, is grating at best. On the other hand, they are among the only people who seem to be invested in providing decent quality gluten free produce which they are willing to stand behind, and though I would trust them on few other things, I am at least willing to trust that they have been thorough in their compulsiveness.

Seeing the results of this attitude I still detest from this new angle has forced me to reconsider my continued denouncements. The presence of a niche gluten-free market, which is undoubtedly a recent development, has, alas, not been driven by increased sensitivity to those with specific medical dietary restrictions, but because in this case my friend’s medical treatment just so happens to align with a subcategory of fad diet. That this niche market exists is a good thing, and it could not exist without kale supporters. The very pickiness that I malign has paved the way for a better quality of life for my comrades who cannot afford to be otherwise. The evangelical attitude that I rage against has also successfully demanded that the food I am buying for my friend is safe for them to eat.

I do not yet think that I have horribly misjudged kale and its supporters. But regardless, I can appreciate that in this matter, they have a point. And I consider it more likely now that I may have misjudged kale supporters on a wider front, or at least, that my impression of them has been biased by my own experiences. I can appreciate that in demanding a market for their fad diets, that they have also created real value.

I am a stubborn person by nature once I have made up my mind, and so even these minor and measured concessions are rather painful. But fair is fair. Kale has proven that it does have a purpose. And to that end I think it is only fitting that I wind down my war on kale. This is not a total cessation of all military action. There are still plenty of nutritional misconceptions to dispel, and bad policies to be refuted, and besides that I am far too stubborn to even promise with a straight face that I’m not going to get into arguments about a topic that is necessarily close to my heart. But the stereotype which I drew up several years ago as a common thread between the people who would pester me about fad diets and misconceptions about my health has become outdated and unhelpful. It is, then, perhaps time to rethink it.

Reflections on Contentedness

Contentedness is an underrated emotion. True, it doesn’t have the same electricity as joy, or the righteousness of anger. But it has the capability to be every bit as sublime. As an added bonus, contentedness seems to lean towards a more measured, reflective action as a result, rather than the rash impulsiveness of the ecstatic excitement of unadulterated joy, or the burning rage of properly kindled anger.

One of the most valuable lessons I have learned in the past decade has been how to appreciate being merely content instead of requiring utter and complete bliss. It is enough to sit in the park on a nice and sunny day, without having to frolic and chase the specter of absolute happiness. Because in truth, happiness is seldom something that can be chased.

Of course, contentedness also has its more vicious form if left unmoderated. Just as anger can beget wrath, and joy beget gluttony, greed, and lust, too much contentedness can bring about a state of sloth, or perhaps better put, complacency. Avoiding complacency has been a topic on my mind a great deal of late, as I have suddenly found myself with free time and energy, and wish to avoid squandering it as much as possible.

This last week saw a few different events of note in my life, which I will quickly recount here:

I received the notification of the death of an acquaintance and comrade of mine. While not out of the blue, or even particularly surprising, it did nevertheless catch me off guard. This news shook me, and indeed, if this latest post seems to contain an excess of navel-gazing ponderance, without much actual insight to match, that is why. I do have more thoughts and words on the subject, but am waiting for permission from the family before posting anything further on the subject.

The annual (insofar as having something two years in a row makes an annual tradition) company barbecue hosted at our house by my father took place. Such events are inevitably stressful for me, as they require me to exert myself physically in preparation for houseguests, and then to be present and sociable. Nevertheless, the event went on without major incident, which I suppose is a victory.

After much consternation, I finally picked up my diploma and finalized transcript from the high school, marking an anticlimactic end to the more than half-decade long struggle with my local public school to get me what is mine by legal right. In the end, it wasn’t that the school ever shaped up, decided to start following the law, and started helping me. Instead, I learned how to learn and work around them.

I made a quip or two about how, now that I can no longer be blackmailed with grades, I could publish my tell-all book. In truth, such a book will probably have to wait until after I am accepted into higher education, given that I will still have to work with the school administration through the application process.

In that respect, very little is changed by the receiving of my diploma. There was no great ceremony, nor parade, nor party in my honor. I am assured that I could yet have all such things if I were so motivated, but it seems duplicitous to compel others to celebrate me and my specific struggle, outside of the normal milestones and ceremonies which I have failed to qualify for, under the pretense that it is part of that same framework. Moreover, I hesitate to celebrate at all. This is a bittersweet occasion, and a large part of me wants nothing more than for this period of my life to be forgotten as quickly as possible.

Of course, that is impossible, for a variety of reasons. And even if it were possible, I’m not totally convinced it would be the right choice. It is not that I feel strongly that my unnecessary adversity has made me more resilient, or has become an integral part of my identity. It has, but this is a silver lining at best. Rather, it is because as much as I wish to forget the pains of the past, I wish even more strongly to avoid such pains in future. It is therefore necessary that I remember what happened, and bear it constantly in mind.

The events of this week, and the scattershot mix of implications they have for me, make it impossible for me to be unreservedly happy. Even so, being able to sit on my favorite park bench, loosen my metaphorical belt, and enjoy the nice, if unmemorable, weather, secure in the knowledge that the largest concerns of recent memory and foreseeable future are firmly behind me, does lend itself to a sort of contentedness. Given the turmoil and anguish of the last few weeks of scrambling to get schoolwork done, this is certainly a step up.

In other news, my gallery page is now operational, albeit incomplete, as I have yet to go through the full album of photographs that were taken but not posted, nor have I had the time to properly copy the relevant pages from my sketchbook. The fictional story which I continue to write is close to being available. In fact, it is technically online while I continue to preemptively hunt down bugs, it just doesn’t have anything linking to it. This coming weekend it slated to be quite busy, with me going to a conference in Virginia, followed by the Turtles All the Way Down book release party in New York City.

The Laptop Manifesto

The following is an open letter to my fellow students of our local public high school, which has just recently announced, without warning, that all students will henceforth be required to buy google chromebooks at their own expense.

I consider myself a good citizen. I obey the traffic laws when I walk into town. I vote on every issue. I turn in my assignments promptly. I raise my hand and wait to be called on. When my classmates come to me at the beginning of class with a sob story about how they lost their last pencil, and the teacher won’t loan them another for the big test, I am sympathetic to their plight. With education budgets as tight as they are, I am willing to share what I have.

Yet something about the rollout of our school’s new laptop policy does not sit well with me. That the school should announce mere weeks before school begins that henceforth all students shall be mandated to have a specific, high-end device strikes me as, at best, rude, and, at worst, an undue burden on students for a service that is legally supposed to be provided by the state at no cost.

Ours is, after all, a public school. Part of being a public school is being accessible to the public. That means all members of the public. Contrary to the apparent belief of the school board and high school administration, the entire student population does not consist solely of financially wealthy and economically stable families. Despite the fact that our government at both the local and state level is apparently content to routinely leave the burden of basic classroom necessities to students and individual teachers, it is still, legally, the responsibility of the school, not the student, to see that the student is equipped to learn.

Now, I am not opposed to technology. On the contrary, I think our school is long overdue for such a 1:1 program. Nor am I particularly opposed the ongoing effort to make more class materials digitally accessible. Nor even that the school should offer their own Chromebooks to students at the student’s expense. However, there is something profoundly wrong about the school making such costs mandatory.

Public school is supposed to be the default, free option for compulsory education. To enforce compulsory education as our state does, (to the point of calling child protective services on parents of students who miss what the administration considers to be too many days,) and then enforcing the cost of that education amounts to a kind of double taxation against families that attend public schools. Moreover, this double taxation has a disproportionate impact on those who need public schools the most.

This program as it stands is unfair, unjust, and as far as I can see, indefensible. I therefore call upon my fellow students to resist this unjust and arguably illegal decree, by refusing to comply. I call in particular upon those who are otherwise able to afford such luxuries as chromebooks to resist the pressure to bow to the system, and stand up for your fellow students.

Schoolwork Armistice

At 5:09pm EDT, 16th of August of this year, I was sitting hunched over an aging desktop computer working on the project that was claimed to be the main bottleneck between myself and graduation. It was supposed to be a simple project: reverse engineer and improve a simple construction toy. The concept is not a difficult one. The paperwork, that is, the engineering documentation which is supposed to be part of the “design process” which every engineer must invariably complete in precisely the correct manner, was also not terribly difficult, though it was grating, and, in my opinion, completely backwards and unnecessary.

In my experience tinkering around with medical devices, improvising on the fly solutions in life or death situations is less of a concrete process than a sort of spontaneous rabbit-out-of-the-hat wizardry. Any paperwork comes only after the problem has been attempted and solved, and only then to record results. This is only sensible as, if I waited to put my life support systems back together after they broke in the field until after I had filled out the proper forms, charted the problem on a set of blueprints, and submitted it for witness and review, I would be dead. Now, admittedly this probably isn’t what needs to be taught to people who are going to be professional engineers working for a legally liable company. But I still maintain that for an introductory level course that is supposed to focus on achieving proper methods of thinking, my way is more likely to be applicable to a wider range of everyday problems.

Even so, the problem doesn’t lie in paperwork. Paperwork, after all, can be fabricated after the fact if necessary. The difficult part lies in the medium I was expected to use. Rather than simply build my design with actual pieces, I was expected to use a fancy schmancy engineering program. I’m not sure why it is necessary for me to have to work ham-fistedly through another layer of abstraction which only seems to make my task more difficult by removing my ability to maneuver pieces in 3D space with my hands.

It’s worth nothing that I have never at any point been taught to use this computer program; not from the teacher of the course, nor my teacher, nor the program itself. It is not that the program is intuitive to an uninitiated mind; quite the opposite, in fact, as the assumption seems to be that anyone using the program will have had a formal engineering education, and hence be well versed in technical terminology, standards, notation, and jargon. Anything and everything that I have incidentally learned of this program comes either from blunt trial and error, or judicious use of google searches. Even now I would not say that I actually know how to use the program; merely that I have coincidentally managed to mimic the appearance of competence long enough to be graded favorably.

Now, for the record, I know I’m not the only one to come out of this particular course feeling this way. The course is advertised as being largely “self motivated”, and the teacher is known for being distinctly laissez faire provided that students can meet the letter of course requirements. I knew this much when I signed up. Talking to other students, it was agreed that the course is not so much self motivated as it is, to a large degree, self taught. This was especially true in my case, as, per the normal standard, I missed a great deal of class time, and given the teacher’s nature, was largely left on my own to puzzle through how exactly I was supposed to make the thing on my computer look like the fuzzy black and white picture attached to packet of make up work.

Although probably not the most frustrating course I have taken, this one is certainly a contender for the top three, especially the parts where I was forced to use the computer program. It got to the point where, at 5:09, I became so completely stuck, and as a direct result so she overwhelmingly frustrated, that to wit the only two choices left before me were as follows:

Option A
Make a hasty flight from the computer desk, and go for a long walk with no particular objective, at least until the climax of my immediate frustration has passed, and I am once again able to think of some new approach in my endless trial-and-error session, besides simply slinging increasingly harsh and exotic expletives at the inanimate PC.

Option B
Begin my hard earned and well deserved nervous breakdown in spectacular fashion by flipping over the table with the computer on it, trampling over the shattered remnants of this machine and bastion of my oppression, and igniting my revolution against the sanity that has brought me nothing but misery and sorrow.

It was a tough call, and one which I had to think long and hard about before committing. Eventually, my nominally better nature prevailed. By 7:12pm, I was sitting on my favorite park bench in town, sipping a double chocolate malted milkshake from the local chocolate shop, which I had justified to myself as being good for my doctors’ wishes that I gain weight, and putting the finishing touches on a blog post about Armageddon, feeling, if not contented, then at least one step back from the brink that I had worked myself up to.

I might have called it a day after I walked home, except that I knew that the version of the program that I had on my computer, that all my work files were saved with, and which had been required for the course, was being made obsolete and unusable by the developers five days hence. I was scheduled to depart for my eclipse trip the next morning. So, once again compelled against my desires and even my good sense by forces outside my control, I set back to work.

By 10:37pm, I had a working model on the computer. By 11:23, I had managed to save and print enough documentation that I felt I could tentatively call my work done. At 11:12am August 17th, the following morning, running about two hours behind my family’s initial departure plans (which is to say, roughly normal for time), I set the envelope with the work I had completed on the counter for my tutor to collect after I departed so that she might pass it along to the course teacher, who would point out whatever flaws I needed to address, which in all probability would take another two weeks at least of work.

This was the pattern I had learned to expect from my school. They had told me that I was close to being done enough times, only to disappoint when they discovered that they had miscalculated the credit requirements, or overlooked a clause in the relevant policy, or misplaced a crucial form, or whatever other excuse of the week they could conjure, that I simply grew numb to it. I had come consider myself a student the same way I consider myself disabled: maybe not strictly permanently, but not temporarily in a way that would lead me to ever plan otherwise.

Our drive southwest was broadly uneventful. On the second day we stopped for dinner about an hour short of our destination at Culver’s, where I traditionally get some variation of chocolate malt. At 9:32 EDT August 18th, my mother received the text message from my tutor: she had given the work to the course teacher who had declared that I would receive an A in the course. And that was it. I was done.

Perhaps I should feel more excited than I do. Honestly though I feel more numb than anything else. The message itself doesn’t mean that I’ve graduated; that still needs to come from the school administration and will likely take several more months to be ironed out. This isn’t victory, at least not yet. It won’t be victory until I have my diploma and my fully fixed transcript in hand, and am able to finally, after being forced to wait in limbo for years, begin applying to colleges and moving forward with my life. Even then, it will be at best a Pyrrhic victory, marking the end of a battle that took far too long, and cost far more than it ever should have. And that assumes that I really am done.

This does, however, represent something else. An armistice. Not an end to the war per se, but a pause, possibly an end, to the fighting. The beginning of the end of the end. The peace may or may not hold; that depends entirely on the school. I am not yet prepared to stand down entirely and commence celebrations, as I do not trust the school to keep their word. But I am perhaps ready to begin to imagine a different world, where I am not constantly engaged in the same Sisyphean struggle against a never ending onslaught of schoolwork.

The nature of my constant stream of makeup work has meant that I have not had proper free time in at least half a decade. While I have, at the insistence of my medical team and family, in recent years, taken steps to ensure that my life is not totally dominated solely by schoolwork, including this blog and many of the travels and projects documented on it, the ever looming presence of schoolwork has never ceased to cast a shadow over my life. In addition to causing great anxiety and distress, this has limited my ambitions and my enjoyment of life.

I look forward to a change of pace from this dystopian mental framework, now that it is no longer required. In addition to rediscovering the sweet luxury of boredom, I look forward to being able to write uninterrupted, and to being able to move forward on executing several new and exciting projects.